I didn't want to write this blog! Partly because I wanted to keep what my family has been going through for the past month private! I also thought that people might take offence to some of the things that Karin and I have laughed about during our daily visits - things that have helped me see that palliative are and dying aren't that scary. But Karin asked me to write and share this blog, so it's with a heavy heart that I dedicate this blog to her memory and to the staff at Riverview Health Centre. Cancer sucks, but palliative care helps everyone cope just a little easier!
I have spent the past three weeks in Winnipeg to be with my family following Karin's (my step-mom) Stage IV Breast Cancer diagnosis. It's not the first time my family has heard the dreaded "C-word" - that happened almost two years ago! But that time Karin's chances to beat this thing were great! She would have to undergo Chemo, a mastectomy and radiation, but afterwards all of our lives would be back to normal; or so we thought! Flash forward one month ago - no that's not a typo - in the last month all of our lives have drastically changed. One month ago, Karin started complaining about flu-like symptoms, aches, pains, headaches, and then she fainted... That's when she ended up at the hospital. It's there that we learned that her Inflammatory Breast Cancer was back, but now it had metastasized in her brain and spine. At first we were told the prognosis was 6 months to a year, but a few days later the doctors decided that transferring her from the Victoria Hospital to Riverview's palliative care unit was her best option with the short time remaining. There's a longstanding joke in Winnipeg that: "No one comes home once they go to Riverview!" For a lot of people "Palliative Care" is a scary world, because it's a place where loved ones go to spend their last days! There's a lot of truth in the joke about Riverview - patients don't leave that place alive! But, there's another side that is not often talked about. Palliative Care Units, such as Riverview, allow patients to maintain their dignity, while caring for the patient and the family members, by letting us know that it's okay to laugh. Basically, they help all of us to see that dying isn't that scary! My past three weeks in palliative care have at times been hard, but many of my afternoons, have been filled with joy. laughter and a lot of heavy narcotics! Okay, the narcotics were for Karin - but I sometimes had to press the button - until the doctors upped her dosage! I've tried to capture the lighter moments of this situation, because these are the moments that our loved ones, like Karin, want us to hold onto when they pass and what the staff at Riverview have managed to give us these past few weeks!
Something that has stood out for both me and Karin is the fact that both the geriatrics and palliative care units share the same floor; we figured that it makes the transfer to the dark side, opps, I mean the East wing, a little quicker! Comparatively, the palliative care wing is much quieter than the geriatrics unit; the only exception is that there are a lot more call bells and IV poles buzzing every few minutes than on the other side. In fact, geriatrics seems to be the party wing, with their daily walks, occupational therapy sessions and rowdy games of bowling and miniature golf! Needless to say, Karin and I have decided that the palliative care unit needs a social director, or at the very least, a representative at these daily outings. Maybe it was the pain meds talking or the side effects of the brain mets, but we have spent our afternoons dreaming up ways for Team Palliative Care to compete and dominate against Team Geriatrics! When Karin got her head shaved, a side effect of the 4 days of Radiation treatment she had, we talked to the nurses about hosting a fashion show, where we'd decorate her beautiful hospital gown and IV pole. Let's be honest, all of these grandiose ideas are nonsense, but boy does it make us laugh! Actually, we have everyone laughing, from the occupational therapist who works with Team Geriatrics, to the nurses we're trying to enlist for our fashion show. Heck, even Karin's parents were laughing when we talked about the need to get her campaign for Social Director off the ground because we didn't know how much time Karin and the voters had left to make this happen! All of this might sound random and a little awful, but these inside jokes - or possible hallucinations - is what allows us to cope with the fact that Karin is dying! It also helps us have fun, so that the final days don't seem so painful.
Besides the caring staff and the individualized attention that is given to each patient, the best thing about palliative care would probably be the drugs - I mean, the "prescribed pain medication!" A good part of my three weeks has been spent making sure that Karin gets her fix, whenever she needs it! In normal circumstances doctors would be hesitant to give patients the amount of meds that Karin is on, because as a few of the student nurses pointed out to us, they are "addiction forming." Really? Is this really going to be a problem? They probably shouldn't have told us about that, because between dreaming up social committee activities for the wing, we also started exploring the possibility of opening a Detox-Palliative Care Unit... You know, to help the terminally-ill patients that have developed a drug addiction, detox in their final days! Once again, the nursing staff were kind enough to to humour us by jumping in on the nonsense! At least once a day we would joke about Karin's newly developed drug-addiction and the fun stories, hallucinations and great rests that they bring. These jokes not only helped lighten the mood and the heaviness of the situation, but sometimes they helped to numb the pain a little - both for Karin and us loved ones that would otherwise have to watch her suffer. The doctors and nurses can't take the pain away, but they do give us tools ( i.e., meds and gentleness) to help manage or numb it a bit! In many ways the laughter has also been a way to manage the pain for all of us!
Apparently there's two things that happen when you become a palliative care patient: 1) You start worrying about trying to take care of everything and everyone with the time you have left and 2) You pretty much get a Free Pass to say, eat and do anything you want! Karin quickly understood this rule and took full advantage of it! In the early days of this diagnosis, lets be honest, it was 3 days before I arrived in Winnipeg, Karin made sure to take care of the nitty-gritty details! But, when I got there she realized that there was one more piece of "unfinished business" that she had to take care of - finding me a husband! She quickly made it her daily mission to try and convince Super-Tony, her day nurse, that I was a super catch. In the real world, this would normally lead to very awkward moments! But not when your a member of Team Palliative - that's because you get to say, do, and eat anything, without worrying about social faux-paus and embarrassing your loved ones. Despite Karin's efforts, I will be returning home to Quebec single and without Super-Tony! But everything else is taken care of - Karin has made sure of that! We have said our goodbyes! We have laughed and we have cried! We have said everything that needs to be said and then some! My dad, little brother, her two teenage kids, and everyone else that has loved her will get through this and will be alright - Karin has made sure of that and she has done so with grace, dignity, love - she hasn't needed to use her Free Pass!
I came to Riverview three weeks ago, and on Monday, I will be defying the odds by going home, but sadly Karin won't! The doctors and nursing staff can't cure Karin's cancer and one day, very soon*, she will lose this battle that she started almost 2 years ago! But what they have done is managed all of our pain, given her the respect and dignity inity that she deserves, while reminding us that it's okay to laugh and continue to make new memories; all of which make death less scary!
Thank you Riverview!
Sleep well my friend!
* On October 24, 2014, Karin's battle with breast cancer ended peacefully. *








